Friday, April 27, 2012
No mother has more love for her child than one who will comfort her child as he slips away from constant, excruciating pain caused by the monster known as Leukodystrophy. Leukodystrophy crushed his milestones and replaced them with pain. Throughout his short life, he didn't question why he could no longer run and play like other boys; he only brought thousands of people together to fight this insidious monster. There is no cure and because this is considered a rare disorder, the research goes on better known diseases.
His mom is my hero, because in spite of her pain of watching her sweet boy die, she has reached back to help my family on our journey. You see, this will be our fate in a short time. The Grandlove will be the little boy in the bed receiving the last bit of love we can give him before his time on Earth is gone.
Thank you, Tadan and Carisa for seeing beyond your pain and helping so many others.